Asperger's Syndrome - an Invisible Disability

78

By Baileybear

Obsessive Interests

Aspies like structure and order, so trains and LEGO are a common obsessive interest
See all 4 photos
Aspies like structure and order, so trains and LEGO are a common obsessive interest

What is Asperger's Syndrome?

  • Asperger's Syndrome (AS) is a neurological condition where the brain is wired differently to the majority. It is considered to be a developmental disorder and an invisible disability, as those affected have marked impairment with social interaction. Asperger's is considered to be an Austistic Spectrum Disorder (ASD). Many people with Asperger appear "almost normal" (particularly females), and may not understand why they encounter difficulties.

 

What Asperger's Disorder is NOT:

  • a psychological disorder, so conventional Freudian or play therapies will not work
  • a disease, and there is no cure
  • something one can grow out of
  • deliberate disobedience
  • a hopeless situation

 

Bond with animals

Aspies often bond more readily with animals than people.  Here is my son with a wild dolphin
Aspies often bond more readily with animals than people. Here is my son with a wild dolphin

Typical Features of Asperger's

  • General lack of awareness of people - tend to not look at people
  • Blind to social conventions and unspoken social "rules"
  • Thinkers - inside their heads constantly
  • May have sensory issues - acute hearing, smell, sight, touch etc causing discomfort
  • Unaware of reciprocal interaction
  • Very blunt to the point of rudeness (but being rude is unintentional)
  • Have narrow special interests to the point of obsession
  • May be fearful and anxious about social situations
  • Easily overwhelmed and frustrated and may tantrum
  • Look and act in quirky, odd and unconventional ways
  • May have diffculties with co-ordination and may be clumsy
  • May be unkempt as chose clothes for comfort not fashion
  • lose track of time, direction
  • may be disorganised
  • socially naive
  • difficulty making friends
  • bully magnets
  • uncomfortable making eye contact

 

Some things that may help:

  • special diet - for moods, tantrums, clarity of mind, behaviour
  • occupational therapy - for sensory issues and co-ordination
  • martial arts - for co-ordination, listening, discipline, achievement, exercise, confidence, self-defense, focus
  • social skills training - to learn how to communicate better and "blend" in more socially, to reduce stigma
  • social stories
  • music therapy and art therapy for relaxation and emotional expression
  • medication - be aware medication on its own does little to help and may make things worse
  • acceptance and understanding at home and school
  • school accommodations
  • learning as much as possible about Asperger's
  • joining a support forum - in person or on-line

Girls Underdiagnosed

Boys are more frequently diagnosed with Asperger's. Girls are under-diagnosed, because they are often able to mask their difficulties to some extent.

The Complete Guide to Asperger's Syndrome
Amazon Price: $14.09
List Price: $24.95

Martial Arts

My son with Aspergers - learning Taekwondo is helping him in so many ways.  I'm taking part in the family class now too
My son with Aspergers - learning Taekwondo is helping him in so many ways. I'm taking part in the family class now too

Research, Read, Question

Don't let a label be slapped on your child that doesn't fit, as this will not help. Asperger's is frequently mis-diagnosed as an anxiety disorder, Obsessive-Compulsive Disorder (OCD), Avoidant Personality Disorder, Attention-Deficit-Hyperactivity-Disorder and more. The above disorders have overlap with Asperger's and may even be co-morbid.

In my son's case, he has Auditory Processing Disorder (inability to make sense of auditory information), which is why he appeared to have ADHD. He does have ADHD characteristics though such as executive function deficits and impulsivity. He also has some OCD traits.

Comments

Dolores Monet profile image

Dolores Monet Level 7 Commenter 23 months ago

Baileybear - thank you for this wonderfully informative hub on Asperger's. As you know, I've written a hub suggesting that Emily Bronte may have had Asperger's and would like to link to this article so that readers may find additional information. Thanks!

Baileybear profile image

Baileybear Hub Author 23 months ago

Thank you for visiting and linking. I found your hub very interesting too

Peggy W profile image

Peggy W Level 8 Commenter 23 months ago

Very interesting and informative. Best wishes to you and your son. He is a handsome young man!

Baileybear profile image

Baileybear Hub Author 23 months ago

thankyou. He is a highly intelligent boy too. He can be challenging to parent, but is also a delight

Christa Dovel profile image

Christa Dovel 22 months ago

Thank you for this list. I have read and read about Asperger's Syndrome, trying to figure out if it fits my oldest son or not. I have been reassured by 'learning professionals' that he does not have autism, because he has a sense of humor, but still I wonder. Either way, I am very careful about what my kids eat, as anything artificial is prone to set them off.

Baileybear profile image

Baileybear Hub Author 22 months ago

Christa, I have written some more hubs about AS, which may be helpful. No two people with AS are the same. The key thread is difficulty with social interactions eg talk at people rather than with them; prefer things and info over people; blind to social cues that other people pick up intuitively. Be aware that people are food sensitive but are not AS. My son and I have a sense of humour, but might not be same as other people's humour

Mr Nice profile image

Mr Nice Level 1 Commenter 22 months ago

Hi Baileybear,

Your son is very cute, I hope he was not misdiagnosed to have Asperger's condition.

Is this condition identifiable or people can tell there is something wrong? Is this condition hereditary? Is this condition treatable.

I really feel sorry for you & your son, your life stories seems like series of unfortunate events. Sometimes you can't do anything but all you can do is find the solution or try to manage it.

I have one hub about Australian jokes too. Here is the link, I hope you will like it. Take care

http://hubpages.com/hub/Australian-jokes

Baileybear profile image

Baileybear Hub Author 22 months ago

thanks Mr Nice, I will take a look - I like your jokes. Yes Asperger's can be heriditary - I am mildly affected too. It can also present in families with no prior history. I have researched AS extensively, and I believe the diagnosis is correct. I have just received a report that also mentions Reactive Attachment Disorder - I wasn't told about that, but apparently it was on a psychiatrist report. I don't know much about it yet to say if I agree with that diagnosis also. I have just written another sad story, about losing my dog with epilepsy

Lita C. Malicdem profile image

Lita C. Malicdem Level 4 Commenter 21 months ago

I see that Asperger's dominate your hub topics and now I know why. Your son is in good hands because you have a good grasp of his condition. I hope and pray that as you are of big help to those with Asperger's you are likewise going to the right method to help your own son. Good luck!

Baileybear profile image

Baileybear Hub Author 21 months ago

thanks Lita. I am currently writing about themes of my own experience, and AS affects us a lot

aliciajadebrowne profile image

aliciajadebrowne 21 months ago

I have a minor case of Aspergers, too =) I consider it a gift, and myself lucky that it's not too severe =)Thank you for this hub, I like to learn more about what I have, even if it's not all totally accurate applied to me or if I don't have it as bad as it's described. I'd say this is all pretty much what I am =D Wonderful hub! Your son is adorable!

Baileybear profile image

Baileybear Hub Author 21 months ago

Thanks, alicia. Mine is rather mild that others would find me quirky more than anything. My son's difficulties are more obvious, particularly as he is prone to meltdowns

advocateforchild profile image

advocateforchild 20 months ago

I always enjoy reading your hubs :0) I look forward to many, many more.

Baileybear profile image

Baileybear Hub Author 20 months ago

Thanks, advocate. I have many more in the pipeline, but is hard to get the chance to sit down and write them with working part-time, raising a child with ASD and moving house in the near future. Hopefully after the move next week, I will be able to write a few more hubs

Old Pete profile image

Old Pete 19 months ago

I am 75 and only found out about AS just over a couple of years ago. Both my son and daughter have children with autistic tendencies. My son had already come to the conclusion that his daughter had AS and when we talked he was surprised that I had never noticed his lack of eye contact. Later we came to the conclusion that my father also had AS. For me it was nothing less than an exciting discovery - it helped to explain why I have been the way I have all these years - the obsession for endless notes - the 'blinkered' approach - the inability to make friends - and finding the 'right' job as a computer programmer 43 years ago.

Baileybear profile image

Baileybear Hub Author 19 months ago

Old Pete - I'm half your age and only learnt about AS a few years ago too - and like you it has been a revelation to me. Being female, and presenting less obviously than males do, I "slipped through the cracks" and many difficulties, despite being highly qualified. It was through my young son's diagnosis that I learned that I have AS too (we were diagnosed "formally" quite recently, even though I've known for a few years now). I've written several hubs about many of our struggles

flinchwymer profile image

flinchwymer 18 months ago

A fascinating and informative read. Well written.

Baileybear profile image

Baileybear Hub Author 18 months ago

thanks for the postive feedback, flinch. I hope to write more on Asperger's soon

magnoliazz profile image

magnoliazz Level 2 Commenter 16 months ago

This is an excellent hub. I wish you and your son the very best. I plan on reading your other hubs in Asperger as well.

Baileybear profile image

Baileybear Hub Author 16 months ago

thanks, magnoliazz. My 'all cat's have asperger's' hub has been well received

Miss Behave profile image

Miss Behave 15 months ago

Thanks for posting this - As a person with Aspergers syndrome myself, It's good to get awareness out there.

Baileybear profile image

Baileybear Hub Author 15 months ago

Miss Behave - thanks for reading. I agree it's good to raise awareness. I've written around half a dozen hubs about AS

Submit a Comment
Members and Guests

Sign in or sign up and post using a hubpages account.



    • No HTML is allowed in comments, but URLs will be hyperlinked
    • Comments are not for promoting your Hubs or other sites

    Please wait working